National Organization for Rare Diseases

Since 1983, NORD has been a national steward and a steadfast partner helping those who battle and care for rare disease feel seen, heard, supported and connected. We're a full-service, mission-driven nonprofit reimagining a future where every person with a rare disease, and their families live their best lives.

As patients, family members, clinicians and researchers, NORD is united by a single purpose — solve the greatest challenges and unmet needs in rare disease patient care, treatment and research.

NORD was first national nonprofit to represent all individuals and families affected by rare disease. Today NORD is the only organization working at the intersection of care, research, policy and community for all rare diseases.